My life as a C5 Quadriplegic / Tetraplegic

The Incident and Its Aftermath

In 1991, a seemingly harmless dive into a swimming pool changed my life forever. The accident left me paralysed from the chest down, with limited arm movement and no hand function. This paralysis affecting all four limbs is known as “quadriplegia” in the US and worldwide, and “tetraplegia” in the UK.

Understanding Spinal Cord Injuries

A spinal cord injury can either be complete or incomplete. In my case, I am classified as a C5 complete, signifying that my spinal cord at the fifth cervical out of the eight cervical bones was entirely severed. This disruption means that there’s no communication beyond that point. If you liken the spinal cord to a tree and its branches, the location and extent of the break determine which branches remain connected. Conversely, someone with a C5 incomplete injury retains some communication, albeit limited, potentially granting them more sensation, movement, and organ control.

Realities and Misconceptions

We often hear uplifting tales of spinal cord injury patients, demonstrating unwavering faith, defying odds, and walking out of hospitals. While it’s true that some regain certain functions, it’s crucial to differentiate between incomplete and complete injuries. Incomplete injuries vary dramatically from person to person, even if they’re at the same level. However, for those with a completely severed spinal cord like mine, self-repair isn’t an option.

The Quest for a Cure

Globally, numerous organizations tirelessly work towards finding a cure for spinal cord injuries. Although I’m not abreast of the latest advancements, as of now, no definitive cure exists. While many fixate on discovering a solution, I choose to focus on living my life to the fullest, hoping that, someday, experts will announce a breakthrough.

Living with Autonomic Dysreflexia

A condition many with spinal injuries grapple with is Autonomic Dysreflexia. Typically, when something goes awry below our level of sensation, signals relayed to the brain prompt an appropriate response. However, for patients like us, this signal fails to reach the brain and instead ricochets throughout the body, causing a rapid spike in blood pressure. Recognized as a medical emergency, this condition, if not promptly addressed, could lead to catastrophic outcomes like strokes. Still, we persevere, preventing and managing its flare-ups as best we can.

Maintaining Wellness and Positivity

While spinal cord injuries are often stable, neither improving nor deteriorating, it’s imperative for patients to prioritize their well-being. This entails maintaining a balanced diet, engaging in regular exercise, and nurturing a zest for life.

Of course being positive never hurt anyone.

Extra Information about Spinal Cord Injuries

United Kingdom

Statistics & Prevalence:

Annually, about 1,000 people in the UK sustain a spinal cord injury, leading to approximately 50,000 people living with SCIs in the country.
Road traffic accidents, falls, sports injuries, and violent incidents are the leading causes of SCIs.

Organizations & Support:

Spinal Injuries Association (SIA): This is the leading UK charity for people with spinal cord injuries. They offer services like advice, support, and campaigning for better medical and social care.
Backup: This charity focuses on supporting people with spinal cord injury through mentoring, wheelchair skills training, and activity courses.

Treatment & Rehabilitation:

The UK has several specialist centers dedicated to spinal cord injuries. These centers provide both initial treatment immediately after injury and longer-term rehabilitation.

United States

Statistics & Prevalence:

The National Spinal Cord Injury Statistical Center (NSCISC) estimates that around 17,730 new SCIs occur each year in the US.
As of 2021, approximately 296,000 Americans live with spinal cord injuries.
Motor vehicle accidents are the leading cause, followed by falls, acts of violence (mainly gunshot wounds), and sports/recreation activities.

Organizations & Support:

Christopher & Dana Reeve Foundation: Established by the late actor Christopher Reeve after his own spinal cord injury, this foundation focuses on funding research and improving the quality of life for people with SCIs.
United Spinal Association: This organization offers resources, advocacy, and support for people with spinal cord injuries and disorders.

Treatment & Rehabilitation:

The US has numerous specialized centers across the country for SCI treatment and rehabilitation, often affiliated with major hospitals or universities.

Research & Advances:

Both countries, but especially the US with its larger research infrastructure, have been at the forefront of research into new treatments for spinal cord injuries. This includes experimental approaches like stem cell therapy, neuroregenerative medicine, and electrical stimulation techniques.

Overall, while spinal cord injuries remain a significant medical challenge, advances in treatment, rehabilitation, and support networks continue to improve the quality of life for individuals affected by these injuries in both the UK and the US.